The day after the concert, John drove Beth and me to the airport for a last-minute weekend trip to Florida. Dr. Hugo Keim, President of ChairScholars, asked Beth to speak to a large crowd of kids with disabilities and their families at their annual festival near Tampa. Dr. Keim and his wife Alicia shared with us how ChairScholars began with a single gift in 1992. It expanded to include scholarships for young people with disabilities in Florida and across the country.
The festival would be the perfect opportunity to thank them in person for Beth’s most generous college scholarship.
Under an immense white tent at the April festival, I talked to remarkable parents and thought of John. More social than me, he often said that everyone has a story. Beth wheeled up the ramp to face the crowd and talked about being open to opportunities and going for the gold, in sports and in life. She encouraged the kids to appreciate the perks of using a wheelchair, like how push handles are great for carrying bags.
And favorite shoes that last forever.
After her speech, some asked for an autograph. It turned into a teaching moment when another mom noticed her unusual grip on the pen. Others crowded around as Beth showed the mom’s daughter how she held and wrote with a standard pen.
Beth’s overseas travels during her years at Harvard concluded with her third trip to England’s World Cup in May and another 50 back bronze medal—in the absence of the three brand new S3 swimmers. Would they skip the Beijing Paralympics?
Back at Harvard, Beth planned her last Friday activity for kids with disabilities and said goodbye to the students and the new KSNAP director she’d trained. With no minutes to spare, swimming six days a week, she worried about finishing papers and studying for finals. Then, before long, glorious freedom.
Next: A Harvard Graduation!
My brand-new Serendipity Newsletter is coming soon! Signed copies of my new book, Struggling with Serendipity, are available at bit.ly/mymemoiroffer. ❤
An important decision needed to be made.
Beth heard back from graduate schools. With acceptance letters from three law schools and Harvard’s Ph.D program at the School of Public Health, she narrowed down the decision to Georgetown Law in Washington, DC, or Stanford Law in California. The idea of going to graduate school in an unfamiliar place appealed to Beth, since she expected to work in DC after law school. She selected Stanford without ever visiting the campus, since she had no open weekends prior to the decision deadline. She wasn't concerned. A great school, great weather, and great outdoor pools. How could she go wrong? Beth accepted at Stanford Law, then promptly and officially deferred law school for one year, as planned four years before with Peggy. Nothing would interfere with her month in Beijing.
Beth’s happy news about Stanford coincided with bad news for John.
The first-year teachers in Newton received pink slips. Their contracts would not be renewed because of major budget cuts. We couldn’t believe it. He had National Board Certification, stellar evaluations, and 31 years of teaching experience, but only Newton seniority mattered. I updated his resume and helped him apply for teaching jobs while he finished the school year. He interviewed in Waltham and South Boston.
At the end of April, I met Beth at the new pub under Harvard’s Annenberg Hall. A packed crowd gathered to launch SPINALpedia, the new disability project Brittany co-founded with Josh Basile. The band Braddigan performed at the event. Beth spoke to the crowd along with another friend and two other quads, including Brittany’s dad.
“My goal was to create a support resource that uses the power of people’s experiences to motivate people with new injuries to adapt their lives,” Brittany said. The band’s lead singer, Brad Corrigan, added, “As a musician, I love stories that are real, and there’s nothing more real than someone sitting in a wheelchair, saying that there’s always hope.”
During the concert, a stranger tripped and accidentally knocked Beth’s chair over backward.
I moved across the room to help, not worried. She had tucked her head safely forward as she fell, chin to chest. Brittany pushed everyone out of the way, including me, before lifting Beth off the floor and back into the wheelchair. Apparently, this had happened before, and Brittany managed the situation to deter anyone inexperienced or drunk from helping. Beth teased her, and Brittany apologized to me, but there was no need. Why would I object to someone looking out for my daughter? With SPINALpedia successfully launched, the website followed, with video clips sharing individual experiences with paralysis.
Next: Florida and England!
Afternoon power naps kept Beth going into the night, though she still looked exhausted. As her senior thesis deadline approached, long to-do lists on her laptop overwhelmed, but she met deadlines. Barely.
Working at a frantic pace, Beth stayed up too late while I learned how to relax for the first time.
I meditated most days, trying different methods and a variety of prompts. Visualizing the headache as an evaporating dark cloud didn’t help. The traditional body scan became my go-to meditation, even though the 30 minutes highlighted the specific ache in each body part. The rest of the day, the aches usually combined into a general malaise.
Never bored, I left the TV off during the day and always had plenty to do. I often played music in the background, from musicals to classic rock. When I finished routine tasks, I tinkered at writing or picked up my sewing bag. I walked down and up Bear Hill and focused on eating better.
I appreciated the year off from paid work.
Beth officially presented her senior thesis, titled Framing Disability: A content analysis on media agenda-setting of disability issues in a political context. Her work earned high honors and analyzed how often specific disability issues appeared in newspaper articles in a presidential election year.
Next: Which Law School?
Unwelcome news arrived with the updated IPC World Rankings. Three S3 competitors from Asia, all teenagers, entered the rankings for the very first time. All in the top five. All newly classified. It was a very rare situation. Beginning S3 swimmers usually entered the rankings in the double digits, not the top 5. Then, it usually took years to train with coaches, improve, and earn a top ranking.
There appeared to be two possible explanations: the swimmers had trained for years and not competed (again, for years) OR, they had more physical function than other S3s, a classification fail. Either way, the three brand-new swimmers bumped Beth down the women’s world rankings list from seventh place to 10th in the 50 free and from eighth place down to 11th in the 50 back.
Four years before, Beth set a realistic goal to medal in Beijing, particularly in the 100 free.
She placed third at the World Cup repeatedly and also earned four medals, including gold, at the Parapan American Games in Rio. Even with the S3 events cut to two sprint races in Beijing, earning a medal at the Paralympics had been attainable--until three new crazy-fast beginning swimmers suddenly grabbed top spots in the S3 World Rankings.
Beth’s chances of medaling immediately dropped from possible to impossible. Yet, there was no turning back. I struggled to let go of the disappointment. Beth and Peggy accepted the news and carried on. The new modified and unspoken goal? To make finals (with a top eight swim during morning prelims) in at least one event and to hit the difficult time in the 50 freestyle to earn a new S3 American Record.
Swimming workouts reached new heights of intensity.
Next: My new life in Massachusetts and Beth’s last months at Harvard!
(Signed copies of my memoir, Struggling with Serendipity, are available at bit.ly/memoiroffer)
I'm a mom on a mission to share the power of hope and connection! For signed copies of my new memoir, click BOOK, and find it on Amazon HERE. It may be found everywhere books are sold. Thanks!
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