The day after the concert, John drove Beth and me to the airport for a last-minute weekend trip to Florida. Dr. Hugo Keim, President of ChairScholars, asked Beth to speak to a large crowd of kids with disabilities and their families at their annual festival near Tampa. Dr. Keim and his wife Alicia shared with us how ChairScholars began with a single gift in 1992. It expanded to include scholarships for young people with disabilities in Florida and across the country.
The festival would be the perfect opportunity to thank them in person for Beth’s most generous college scholarship.
Under an immense white tent at the April festival, I talked to remarkable parents and thought of John. More social than me, he often said that everyone has a story. Beth wheeled up the ramp to face the crowd and talked about being open to opportunities and going for the gold, in sports and in life. She encouraged the kids to appreciate the perks of using a wheelchair, like how push handles are great for carrying bags.
And favorite shoes that last forever.
After her speech, some asked for an autograph. It turned into a teaching moment when another mom noticed her unusual grip on the pen. Others crowded around as Beth showed the mom’s daughter how she held and wrote with a standard pen.
Beth’s overseas travels during her years at Harvard concluded with her third trip to England’s World Cup in May and another 50 back bronze medal—in the absence of the three brand new S3 swimmers. Would they skip the Beijing Paralympics?
Back at Harvard, Beth planned her last Friday activity for kids with disabilities and said goodbye to the students and the new KSNAP director she’d trained. With no minutes to spare, swimming six days a week, she worried about finishing papers and studying for finals. Then, before long, glorious freedom.
Next: A Harvard Graduation!
My brand-new Serendipity Newsletter is coming soon! Signed copies of my new book, Struggling with Serendipity, are available at bit.ly/mymemoiroffer. ❤
An important decision needed to be made.
Beth heard back from graduate schools. With acceptance letters from three law schools and Harvard’s Ph.D program at the School of Public Health, she narrowed down the decision to Georgetown Law in Washington, DC, or Stanford Law in California. The idea of going to graduate school in an unfamiliar place appealed to Beth, since she expected to work in DC after law school. She selected Stanford without ever visiting the campus, since she had no open weekends prior to the decision deadline. She wasn't concerned. A great school, great weather, and great outdoor pools. How could she go wrong? Beth accepted at Stanford Law, then promptly and officially deferred law school for one year, as planned four years before with Peggy. Nothing would interfere with her month in Beijing.
Beth’s happy news about Stanford coincided with bad news for John.
The first-year teachers in Newton received pink slips. Their contracts would not be renewed because of major budget cuts. We couldn’t believe it. He had National Board Certification, stellar evaluations, and 31 years of teaching experience, but only Newton seniority mattered. I updated his resume and helped him apply for teaching jobs while he finished the school year. He interviewed in Waltham and South Boston.
At the end of April, I met Beth at the new pub under Harvard’s Annenberg Hall. A packed crowd gathered to launch SPINALpedia, the new disability project Brittany co-founded with Josh Basile. The band Braddigan performed at the event. Beth spoke to the crowd along with another friend and two other quads, including Brittany’s dad.
“My goal was to create a support resource that uses the power of people’s experiences to motivate people with new injuries to adapt their lives,” Brittany said. The band’s lead singer, Brad Corrigan, added, “As a musician, I love stories that are real, and there’s nothing more real than someone sitting in a wheelchair, saying that there’s always hope.”
During the concert, a stranger tripped and accidentally knocked Beth’s chair over backward.
I moved across the room to help, not worried. She had tucked her head safely forward as she fell, chin to chest. Brittany pushed everyone out of the way, including me, before lifting Beth off the floor and back into the wheelchair. Apparently, this had happened before, and Brittany managed the situation to deter anyone inexperienced or drunk from helping. Beth teased her, and Brittany apologized to me, but there was no need. Why would I object to someone looking out for my daughter? With SPINALpedia successfully launched, the website followed, with video clips sharing individual experiences with paralysis.
Next: Florida and England!
Afternoon power naps kept Beth going into the night, though she still looked exhausted. As her senior thesis deadline approached, long to-do lists on her laptop overwhelmed, but she met deadlines. Barely.
Working at a frantic pace, Beth stayed up too late while I learned how to relax for the first time.
I meditated most days, trying different methods and a variety of prompts. Visualizing the headache as an evaporating dark cloud didn’t help. The traditional body scan became my go-to meditation, even though the 30 minutes highlighted the specific ache in each body part. The rest of the day, the aches usually combined into a general malaise.
Never bored, I left the TV off during the day and always had plenty to do. I often played music in the background, from musicals to classic rock. When I finished routine tasks, I tinkered at writing or picked up my sewing bag. I walked down and up Bear Hill and focused on eating better.
I appreciated the year off from paid work.
Beth officially presented her senior thesis, titled Framing Disability: A content analysis on media agenda-setting of disability issues in a political context. Her work earned high honors and analyzed how often specific disability issues appeared in newspaper articles in a presidential election year.
Next: Which Law School?
Unwelcome news arrived with the updated IPC World Rankings. Three S3 competitors from Asia, all teenagers, entered the rankings for the very first time. All in the top five. All newly classified. It was a very rare situation. Beginning S3 swimmers usually entered the rankings in the double digits, not the top 5. Then, it usually took years to train with coaches, improve, and earn a top ranking.
There appeared to be two possible explanations: the swimmers had trained for years and not competed (again, for years) OR, they had more physical function than other S3s, a classification fail. Either way, the three brand-new swimmers bumped Beth down the women’s world rankings list from seventh place to 10th in the 50 free and from eighth place down to 11th in the 50 back.
Four years before, Beth set a realistic goal to medal in Beijing, particularly in the 100 free.
She placed third at the World Cup repeatedly and also earned four medals, including gold, at the Parapan American Games in Rio. Even with the S3 events cut to two sprint races in Beijing, earning a medal at the Paralympics had been attainable--until three new crazy-fast beginning swimmers suddenly grabbed top spots in the S3 World Rankings.
Beth’s chances of medaling immediately dropped from possible to impossible. Yet, there was no turning back. I struggled to let go of the disappointment. Beth and Peggy accepted the news and carried on. The new modified and unspoken goal? To make finals (with a top eight swim during morning prelims) in at least one event and to hit the difficult time in the 50 freestyle to earn a new S3 American Record.
Swimming workouts reached new heights of intensity.
Next: My new life in Massachusetts and Beth’s last months at Harvard!
(Signed copies of my memoir, Struggling with Serendipity, are available at bit.ly/memoiroffer)
I flew with Beth over Boston Harbor into Logan airport. John picked us up, and we dropped our daughter off at her college dorm with only weeks left in her last semester. The next goal? Her first tattoo. Since she couldn’t swim for a few days after the inking, she’d planned the timing perfectly, immediately after a big meet and right before her next training cycle.
It would be the last time two days passed without a long pool workout until after Beijing.
The day after the team announcement in Minneapolis, I held Beth’s leg down firmly at a tattoo parlor in Harvard Square. Her leg protested the needle and bounced with involuntary spasms. She chose a two-inch design on her upper left thigh of the new U.S. Paralympics symbol of a bold blue star with three waving lines of color below. The star turned out flawless despite a moving leg. We shared Beijing details with Maria over dinner at Bertucci’s in the Square. And of course, Beth showed her sister the new tattoo.
A clear and bright reminder of success.
Both of Beth’s elbows swelled for the first time as she started her most intense training cycle with a focus on the forward freestyle, consistently faster than the backstroke after six years of practice. A doctor prescribed a strong anti-inflammatory at a high dose. Hit with a piercing, unrelenting headache, Beth called the doctor. He ordered an MRI for the same day. I drove her to the test, relieved I lived close instead of in Ohio. I’d never seen her in that much pain before. Fortunately, the test results came back normal, and her symptoms gradually disappeared when she stopped the prescription.
Newspapers in Massachusetts and Ohio printed articles about Beth’s upcoming Beijing trip.
Her swim coach, Peggy, said, “Beth’s talents lie in her ability to set goals, both short and long term, overcome obstacles, and accomplish those goals while consistently maintaining a positive and fun attitude.”
(Interested in a signed copy of Struggling with Serendipity? Click HERE!)
Beth and I flew together to Minneapolis the first weekend in April. At the Trials meet, she would probably earn a spot on the Beijing team. Even so, nothing was guaranteed.
Everything hinged on how fast she swam in the next three days.
We welcomed Coach Becca to her first Paralympic meet. She met Peggy after emailing back and forth about training goals and workouts for almost two years. Beth laser-focused on swimming fast. No shopping at the Mall of America in the afternoon as she did at her first Minneapolis meet five years before. From the upper tier seats, I wrote to-do lists with end of college details and watched races.
A young girl from the United States in her early teens swam as an S3, newly classified. She didn’t make finals cuts, like many at their first national meet. Judging from her expression, she saw the possibilities as Beth had six years before. No one had any way of knowing the new swimmer would be reclassified to S2 and S1 in the future, caught in the vague criteria of the low-numbered classifications. However, I had no doubt she’d be at the next Paralympic meet, getting faster and making more new friends.
The morning after Trials, the ceremony to announce the Beijing Paralympics team filled the pool lobby.
They called out names randomly, not alphabetically. The swimmer or coach moved through the crowd to be congratulated at the front. Each received a red, white, and blue hockey jersey with USA on the front and their last name sewn on the back in large letters. As the number at the front grew, I questioned my expectations. Beth glanced my way, and I responded with an encouraging smile. Then Peggy stood at the front with the team.
Hearing my daughter’s name a minute later, we all shared a wave of relief and elation.
Beth put on her hockey jersey with Kolbe in big letters on the back. As cameras flashed, she never stopped smiling, basking in the achievement of her four-year goal. To share the good news, I talked to John in Waltham while Beth called Coach Becca who had left the day before. Faithful to our tradition, we outlined Beijing plans with Peggy over scoops of chocolate ice cream.
p.s.- My new book, Struggling with Serendipity, is available everywhere books are sold. Top 100 on Amazon in two categories, thank you! :-)
At Beth’s last Harvard Women’s Swimming and Diving banquet, the team donned gorgeous fresh-flower leis, gifts from a senior from Hawaii. Receiving the Coaches Award for attitude and contributions to the team surprised Beth. She presented her gold medal to Coach Morawski in gratitude.
The head coach framed the gold with a written tribute. The medal found a new home in the hallway leading to Blodgett pool among pictures of Harvard’s best.
Beth would have more to add to her legacy.
When the college swim season ended, Beth immediately plunged into a new training cycle. She worked with her Harvard coaches to prepare for the Paralympic Trials in April. Other Harvard teammates trained for the USA Olympic Trials or the Olympic Trials in their home countries.
“The most amazing thing about Beth is though we classify her as someone who's disabled,” Coach Becca told a reporter, “she's just someone who shows the people around her how able she is.”
At the end of February, Beth woke up one morning with a high fever and congestion. A chest x-ray showed a small pocket of pneumonia in the lower right lobe, not as severe as her first pneumonia. She insisted on trying antibiotics first before considering a hospital stay. I couldn’t convince her to minimize her swim training for more than a few days. She gradually felt better despite a relentless senior year and pool schedule.
Next: Minneapolis Trials meet for the Beijing Paralympics!
Today, I’m taking a blog break to share a splash of serendipity with you!
I was visiting Beth in DC last weekend, and my best friend Deb went to the Wine Room in Marblehead (Ohio) with another friend, Alley. All of us had lived in Tiffin, a small NW Ohio town. Deb was the kindergarten teacher for my son Ben and Alley’s daughter Regina. Ben and Regina were the stars of the kindergarten play that year. Deb recognized Regina’s singing talent and today, Regina has a booming career as a professional singer (www.reginasayles.com).
Regina's mom, Alley, is good friends with Lisa, who owns Mutach’s Market and Wine Room in Marblehead. After talking at the Wine Room, Lisa’s fiancé, Tim, mentioned growing up in Lorain. John and I grew up in Lorain, so Deb asked him if he knew the Kolbe’s.
Tim and John were best friends in 6th grade at St. Stanislaus School when they were growing up in Lorain.
Tim’s awesome bakery, Kiedrowski’s, made the cupcakes for my daughter Maria’s wedding, and we enjoyed more of his cupcakes at Beth’s wedding shower last summer.
Small world. Sweet story, right?
But wait, there’s more! Deb mentions my new book coming out, and my April book events in Ohio. Tim says that he’d like to have a book event at the Wine Room during that time. I talk to Tim on the phone the next day about possible dates, and he’s excited about helping with publicity for it. I connect with Lisa the next day, and she is just as lovely as Tim. So, in two weeks, on Thursday, April 18 at 7 pm, I will be at Mutach’s Wine Room in Marblehead with John to talk about my new book—but the real entertainment will be Tim and John sharing their childhood antics!
Yay for serendipity!
For Beth's third season on the Harvard Women’s Swimming and Diving roster, she added new pump-up songs to her swim meet iPod mix, including “Stronger” by Kanye West. I smiled when she sang along to the chorus. Maybe challenges really did make us stronger? During team practices, she usually typically swam a mile over two hours. In October, a doctor tried to drain her inflamed right elbow. He found no fluid, just swollen tissue.
Coach Becca worked with Beth during one-on-one sessions at Blodgett as well as team practices. “I never heard her complain,” the coach said in The Harvard Crimson.
John and I looked forward to all of the HWSD home meets her senior year, often sitting sat with Maria in the red seats. At a November meet, with Harvard dominating the point count, three of Beth’s teammates wore flippers in a relay with my daughter substituted as the fourth. Other swimmers clustered at the end of the lane to cheer her on. She cut a whopping 10 seconds off her previous short course American Record in the 50 back, set at a HWSD meet only a year before. An article in the NCAA Champion magazine described how Beth, “added another level of excitement to home crowds at Blodgett Pool, especially when records were at stake.”
“No matter what team we raced against,” Beth told a reporter, “people always came up to me and congratulated me. It was kind of strange sometimes, but I guess it's great for them to see someone with a disability compete on a college varsity team.”
At the last home meet, swimmers on the men’s team honored Beth and the other seven seniors on her team with bouquets of flowers. Afterward, John, Maria, Beth, and I ordered pad Thai and big bowls of vegetable noodle soup at a Vietnamese restaurant in Harvard Square.
The following weekend, I drove Beth to Yale in Connecticut to compete at the last away meet of the season. She laughed and clapped when the freshman swimmers on her team danced on the pool deck and sang, “We're All in This Together,” from High School Musical.
Beth finished her Harvard career with six Paralympic American Records set at Blodgett pool in the free, back, and butterfly.
*More exciting book news! Book talks and signings soon in Washington DC, Ohio, and Boston bookstores! bit.ly/mybooktour Hope to see you! My new memoir, Struggling with Serendipity, is available everywhere books are sold. Signed copies are available here: bit.ly/memoiroffer.
Beth’s senior year at Harvard created a mosaic of color squares on her computer’s calendar. Orange for classes, red for assignment deadlines, yellow for disability work, blue for swim workouts, purple for fun, and green for everything else, including volunteering and swim meets.
Beth made a concerted effort to increase the purple blocks on her calendar.
She participated in more college activities, most for the first time, including the annual ‘80s Dance, ‘90s Dance, A Cappella Concert, and Comedy Show. She also cheered for her friend Brittany during a rugby game.
“Brittany got me out of my shell during my senior year,” Beth said. “Before then, I hardly ever went out socially.”
Early one weekend morning after the T stopped running, Beth, Brittany, and three friends hailed a taxi in Boston. The driver said only four of them could ride at one time. Brittany creatively insisted Beth needed to sit on someone’s lap because of her disability.
The driver kept his thoughts to himself as all five girls rode in the taxi to Harvard.
With a full load of classes, Beth prioritized her homework, kept up on writing assignments, and saved books to read later. She no longer tried to read every word. Graduate school applications also required chunks of time. She applied to four law schools and a doctorate program at Harvard’s School of Public Health.
❤ Fun fact: Years later, Beth was a bridesmaid in Brittany’s wedding. This May (2019), Brittany will be a bridesmaid in Beth’s wedding!
Exciting book news: my Washington DC, Ohio, and Boston events are set! bit.ly/mybooktour Signed copies are available at bit.ly/memoiroffer. Amazon has the paperback and kindle e-book for pre-order, with both coming very soon!
I'm a mom on a mission to share the power of hope and connection! For signed copies of my new memoir, click BOOK, and find it on Amazon HERE. It may be found everywhere books are sold. Thanks!
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